Acthar is a prescription medicine for people with symptomatic sarcoidosis.

Acthar is a prescription medicine for people with symptomatic sarcoidosis.

Personal Nurse Coach

As soon as you and your doctor decide Acthar is right for you, ActharPACT (Patient & Acthar Coaching Team) will be here to support you in managing your condition. This service comes at no cost to you. By signing up for ActharPACT, you can:

  • Get information and encouragement from your own nurse coach, who is available to call you at times that are convenient for you
  • Get connected to other kinds of help you might need, including reimbursement support, injection training, and medication refills
  • Get tips to help you solve any problems you run into and stay motivated throughout your treatment
  • Receive mailings that are written with your situation in mind and packed with helpful tips

Your Registered Nurse

You can get personalized support from a registered nurse who is trained in your condition and Acthar. Your nurse will be available by phone to help with any questions or concerns and to support you throughout your treatment.

Once you enroll, your nurse will contact you to:

  • Set up a call schedule that works best for you
  • Talk with you about your Acthar treatment, as well as any challenges that might come up
  • Answer any questions you have about treatment or connect you with someone who can help answer your questions
  • Send you, at your request, materials that include helpful tips and information, and cover topics related to your condition and Acthar

Your nurse will keep in touch with you throughout treatment to help you problem-solve and stay motivated. Calls can be as frequent or infrequent as you like. You can also cancel this service at any time.

Enroll in ActharPACT to get access to nurse coaches and a 24/7 hotline providing guidance, support, and helpful tips at no cost to you, whenever you need them.

Nurses are standing by at 1-877-546-PACT (1-877-546-7228) to answer your call. (Translation services for over 180 languages are available upon request.) You can also enroll at the Online Enrollment Center.

Additional Tools

You’ll also have the option of receiving the following:

  • A sharps container to dispose of your used needles. Learn more about sharps disposal
  • Personalized follow-up materials with useful information about your Acthar treatment
Download the ActharPACT Brochure

This helpful guide details all the no-cost benefits available to you. Download >

Learn About Our Educational Resources

Find resources to help you learn more about your condition and treatment options. Learn more >

Important Safety Information

DO NOT take Acthar until you have talked to your doctor if you have any of the following conditions:


Important Safety Information


DO NOT take Acthar until you have talked to your doctor if you have any of the following conditions:

  • A skin condition called scleroderma
  • Bone density loss or osteoporosis
  • Any infections, including fungal, bacterial, or viral
  • Eye infections, such as ocular herpes simplex
  • Had recent surgery
  • Stomach ulcers or a history of stomach ulcers
  • Heart failure
  • Uncontrolled high blood pressure
  • Allergies to pig-derived proteins
  • Have been given or are about to receive a live or live attenuated vaccine
  • Suspected congenital infections (in children under 2 years of age)
  • If you have been told that you have Cushing’s syndrome or Addison’s disease

Tell your doctor about any other health problems that you have. Give your doctor a complete list of medicines you are taking. Include all nonprescription medicines, vitamins, and herbal supplements that you are taking.

What is the most important information I should know about Acthar?

  • Never inject Acthar directly into a vein
  • Always inject Acthar beneath the skin or into the muscle
  • Follow your doctor’s instructions for injecting Acthar
  • Never stop treatment suddenly unless your doctor tells you to do so
  • Try not to miss any scheduled doctor’s appointments. It is important for the doctor to monitor you while taking Acthar

Acthar and corticosteroids have similar side effects.

  • You may be more likely to get new infections. Also, old infections may become active. Tell your doctor if you see any signs of an infection. Contact your doctor at the first sign of an infection or fever. Signs of infection are fever, cough, vomiting, or diarrhea. Other signs may be flu or any open cuts or sores
  • When taking Acthar long term, your adrenal gland may produce too much of a hormone called cortisol. This can result in symptoms of Cushing’s syndrome. This may cause increased upper body fat, a rounded “moon” face, bruising easily, or muscle weakness
  • Sometimes when you stop taking Acthar long term, your body may not produce enough natural cortisol. This is called “adrenal insufficiency.” Your doctor may prescribe a steroid medicine to protect you until the adrenal gland recovers
  • You might develop high blood pressure, or retain too much fluid. As a result of this, your doctor may recommend some changes to your diet, such as eating less salt and taking certain supplements
  • Vaccines may not work well when you are on Acthar. Talk to your doctor about which vaccines are safe to use when you are taking Acthar
  • Acthar may hide symptoms of other diseases. This can make it more difficult for your doctor to make a diagnosis if something else is going on
  • Stomach or intestinal problems. Acthar may increase the risk of bleeding stomach ulcers. Tell your doctor if you have stomach pains, bloody vomit, bloody or black stools, excessive tiredness, increased thirst, difficulty breathing, or increased heart rate
  • Taking Acthar can make you feel irritable or depressed. You may also have mood swings or trouble sleeping
  • If you have other conditions, such as diabetes or muscle weakness, you may find they get worse
  • You might develop certain eye conditions, such as cataracts, glaucoma, or optic nerve damage
  • Your body may develop allergies to Acthar. Signs of allergic reaction are:
    • Skin rash and itching
    • Swelling of the face, tongue, lips, or throat
    • Trouble breathing
  • Long-term Acthar use can affect growth and physical development in children. This can be reversed when Acthar is no longer needed
  • Acthar may cause osteoporosis (weak bones)
  • Acthar might harm an unborn baby. Therefore, tell your doctor if you are pregnant or plan on becoming pregnant

What are the most common side effects of Acthar?

The most common side effects of Acthar are similar to those of steroids. They include:

  • Fluid retention
  • High blood sugar
  • High blood pressure
  • Behavior and mood changes
  • Changes in appetite and weight

These are not all of the possible side effects of Acthar.

Tell your doctor about any side effect that bothers you, or that does not go away. Call your doctor or pharmacist for medical advice about side effects. You may report side effects to the FDA. Call 1-800-FDA-1088 or visit You may also report side effects by calling 1-800-778-7898.

Please see full Prescribing Information.